Downside Up charity foundation

More than work. Socialization and integration into society of people with Down syndrome

Main values

Geography: Moscow

CSS contribution, rubles

3 769 353

Total budget, rubles

5 050 344

Implementation period, months

12

Organization site

https://downsideup.org

Beneficiaries

Young adults

83

Project idea

The project envisions creating workshops aimed at providing career guidance, employment opportunities, and social integration for adolescents and adults with Down syndrome (DS). The project includes creating protected jobs in workshops for printing, weaving, felting, graphics, and sewing. It aims to increase the autonomy of participants by providing training in self-care, domestic management, culinary skills, financial management, and digital literacy. Additionally, the project focuses on broadening participants' social networks by offering instruction in verbal communication techniques, communication etiquette, and safe use of the Internet, social media platforms, and messengers. It includes vocational rehabilitation for those requiring tailored assistance and extends support to parents through parent meetings, webinars, educational videos, and visual instructions, systematizing experience and developing methodological materials for transferring to other organizations working with people with DS and other mental differences.

Participation in the project will allow adolescents and adults with Down syndrome (DS) to become more independent, expand their social circle, determine their future path after school, and increase their chances of employment. This will improve the quality of life for both the project participants and their families.

Relevance

The project is aimed at addressing the issue of social isolation faced by people with Down syndrome (DS) and their families, including the realization of their right to work.

Historically, the perception of people with DS as uneducable has led to a lack of development programs for them, including vocational training. The majority of current programs prioritize early intervention or fragmented support instead of comprehensive training in social and employment skills.

In Russia, the employment rate of working-age people with disabilities is only 10-12%, and there is no data on the employment of people with intellectual disabilities, but only isolated cases of employment for people with DS are known.

The low employment rate among individuals with mental disabilities can be attributed to a deficiency in essential life skills, such as self-care, social interaction, and vocational guidance.

Implications of the social issue include social isolation, limited opportunities for an active social life, lack of opportunities for employment.

Social effect

Eliminating the causes of social isolation for people with Down syndrome and their families by increasing their independence level, developing social and employment skills, and providing vocational rehabilitation in a protected workshop in Moscow.

KPI

80
adolescents and young adults with DS participating in the activities and events organized within the project
80
parents participating in online and/or offline parent meetings
600
families with children aged 13 and older with DS, registered in the foundation's database, receiving informational and methodological support through newsletters and educational materials
120
specialists from educational institutions, NGOs, state employment services, and private companies participating in the webinars
2000
specialists working with people with intellectual disabilities, registered in the foundation's database, receiving a mailing with webinar recordings and methodological materials developed within the project

KPI

83
adolescents and young adults with DS participating in the activities and events organized within the project
81
parents participating in online and/or offline parent meetings
856
families with children aged 13 and older with DS, registered in the foundation's database, receiving informational and methodological support through newsletters and educational materials
221
specialists from educational institutions, NGOs, state employment services, and private companies participating in the webinars
3130
specialists working with people with intellectual disabilities, registered in the foundation's database, receiving a mailing with webinar recordings and methodological materials developed within the project

Project Results

Throughout the project's execution, specialized workshops for children and young adults with Down syndrome were comprehensively outfitted within the newly allocated facilities, generously provided at no cost by the Department of Labor and Social Protection. The opening of the workshops was a significant step for the fund and allowed for services to reach even more beneficiaries. The workshops hosted in-person daytime activities, career orientation classes, self-advocacy training, a media laboratory, sewing and cooking classes, and regular parent meetings. Drawing on the experience gained during the period of self-isolation, several sessions were successfully transitioned to an online format, which allowed the project to exceed the initial plan for working with specialists and expand services for children and their families.

A specially created online platform was presented to digital technology experts for their expert opinion, and in-depth interviews were conducted with pilot group participants, "Downside Up" specialists, and the children's parents regarding the application of acquired knowledge. Platform statistics were analyzed, and conversations were held with platform users with Down syndrome about expanding their social connections.

The children with Down syndrome, users of the platform, remain participants in the "Downside Up" programs, making it possible to track the dynamics of their social contacts and engagement in the community environment.

Digital technologies support them in finding and maintaining employment.

Project progress after CSS funding

After the successful implementation of the pilot project, further development of the digital educational environment for people with Down syndrome is planned.

Expansion of the platform's functionality.  Integration with other resources. Increasing the platform's accessibility. Training of specialists.  Broadening the use of the platform. Further development of the project will allow more people with Down syndrome to be reached and improve their quality of life.